Day -7 (August 16, 2010)

Posted: August 16, 2010 by Kat in Uncategorized

They started the TBI (total body irradiation) about 7:30 this morning. Creed was hesitant about being put to sleep, which obviously caused everyone some stress. They put the medication in his port (which Creed calls his pork) and mid-sentence, he was out.

Steph and Jon went upstairs to the cafe to wait for the process to complete. While waiting, Courtney arrived to provide much needed support. After about 45 minutes, the irradiation was complete.

The picture below shows the door to the room where he receives the TBI. This gives you some idea of the severity of what happens in that room.

Creed had a really difficult time waking up from the anesthesia. He was thrashing and kicking and whining. Steph calmed him down by giving him his blanket and helping him to feel secure again.

He was very low key and quiet and had a headache. After a little Tylenol and a two hour nap, he was much better and even took a few laps around on his tricycle.

Courtney brought an amazing basketball goal for his room (thanks to the Waggoners and Granda and Big). He will be a pro by the time he leaves there!

The tough thing is that he will have to be put to sleep and receive the TBI twice a day for the next three days. I’ve heard parents say the worst part of having to put tubes in kids ears is that they have to be put to sleep. I can’t imagine going through that over and over as Creed is about to do.

He is heading back for his next TBI at 3:30. I know they would appreciate prayers to help him adjust well to the process, and for his body to respond appropriately. She loves receiving your emails, texts, comments and knowing that prayers are being put forth for all of them during this time.

I am sure that this sounds all too familiar to the Lighthouse friends and those who have walked this path before. And for those who have not, it is sincerely humbling to hear these stories and imagine placing your child in such situations.

And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus.
Philippians 4:7

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Comments
  1. Beth Clay says:

    When you pass through the waters, I will be with you; And through the rivers, they will not overflow you. When you walk through the fire, you wil not be scorched, nor willthe falme burn you. FOR I AM THE LORD YOUR GOD.

    Isaiah 43:2-3

    Praying for “blessings” to come your way. Love, Beth Clay

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