So glad to report another good day!! This morning the doctors came in to give us the plan for the day. For the first time in awhile, KY, Creed’s primary BMT doc actually smiled as he said goodbye. That was a good sign to start the day on. Creed’s done really well all day. His vent settings have been decreased and they started feeding him through his NG tube. In the past, whenever they start putting food in his tummy, that’s a good sign. His X-ray from this morning showed much improvement!! He’ll have another one in the morning. He’s been off of the paralytic medication since yesterday morning and will remain off unless he need’s it. He’s stirred quite a bit today and even shook his head no when asked a question. As for tomorrow, it’s pretty much more of the same, resting, and weaning down on the vent.
I’ve slowly started to relax and come down off the ledge. I can see the good from all the machines and seeing progress is always comforting. I’m completely supported from friends and pretty much all of the nurses from BMT. I love seeing them come down here to check on us. They really are part of our family. Hopefully it won’t be long and we’ll be settled back in upstairs and this will be all behind us.
Until tomorrow…
Love,
Creed’s mom
Creed's Story 
Steph,
What great news!!! Your strength and courage are a testimony and witness to so many. Our God is an AWESOME God!!!
Continuing to pray!
Much love,
Debra Knight
Stephanie and creeder,
It was so great to see u guys today and such a blessing to see creeder move and open his eyes for a few quick seconds. It truly was such an exciting moment for me and I know its been for the other nurses as well. I just love that our nightly routine at home has recently consisted of a beep alarming on my phone only for me to find creeders daily update. I then say, andrew want to hear creeds update for the day to which he replies yes, and then I read outloud while him and cody listen, and then we pray, and tell cody he will get to meet creeder once he gets all better. We hate that this is happening to creed and wish that updates like this past week weren’t necessary, but in the midst of it all its been very special to be a part of creeds prayor warriors and to see first hand how those prayers are working. Tonight we pray for rest, comfort, and improvement in labs, blood gasses, vent settings, counts, and blood pressure. See u tomorrow with beads of course.
Dawn (andrew and cody)
Stephanie and Creed, We cannot begin to tell you how
excited we were to read this update! I was upstairs checking your
blog and nearly fell down the stairs trying to run down here to
tell Ryan! Creed you are by far the toughest guy we know. We are
praying so hard for you and your mom and dad. Praying for a night
of peaceful rest and another day of much improvement! We love you!
Ryan, Beth, Ryder and Maxi-Max!
December 16, 2010 Good morning Lord, It’s 6:35 am and this
is my favorite time to sit in your presence. You and I have been
meeting like this for many years but this morning is more precious
as I sit and reflect on my life and blessings that You have
bestowed and blessed me with. Thirty five years ago, you placed a
bundle of pure joy in my arms and gave me the honor and priviledge
of her calling me her mom. We have enjoyed so many wonderful things
together and shared many heartaches together. The good things were
multiplied by sharing and the sad things were split in half by
sharing to make life’s burdens lighter to bear. As I sit here
between my precious daughter and grandson, my mind goes back to
wonderful memories of rocking, feeding and caring for her through
many sleepless nights. Has it really been 35 years ago? Funny it
seems like just yesterday. Sledding in baby bathtubs, skint knees,
riding bikes, first ugly word, dancing, gymnastics, twirling, High
Stepper mascot, sitting at the foot of the bed chatting into the
night and sharing always sharing whether we agreed or not and
through it all you were a part of us. Perfect? No, I am far from
that. Mistakes? Yes, I have made many of them. But memories? Oh
definitely, and that is where I sit now. Sitting here praising You
for the wonderful sacred memories watching her grow into the
wonderful beautiful Christian woman that she is now. Then my
thoughts turn to a very special time in her life. The day You
placed a sweet bundle of joy, she named Creed, into her arms. Our
journey these 6 years has not been an easy one, but it has kept us
walking hand in hand with you and as usual has taught us what is
important in life. Oh the precious memories we continue to make as
she raises her son as a Godly mother. Teaching, encouraging,
rocking, holding, loving and nurturing him. Oh the memories she is
making with him and allowing me to make with him. Father, I love
watching my Steph interact with her Creed. To see the love shine in
her eyes as she plays with him, holds him when he is sick, talks
about him to others and even as she watches tv with him I am filled
with love and compassion for her. She is an amazing young mother.
She never ceases to give all that she has for her son. Her life is
one filled with decisions, trips to the clinic and hospital, days
upon days of hospital life and yet she never complains. She simply
does what she needs to do for that precious gift of life that You
gave her. As I sit here and contemplate on this Christmas season, I
pray that I get only one gift for Christmas. In all that is Holy,
in the precious name of Jesus Christ, my Lord and Savior, I ask You
to hear the prayers of Your children and give Creed complete
healing. I ask You to restore him to one hundred percent health.
You have placed him here for a mighty purpose and as You have
already revealed Yourself mightily through the ages, I pray that
you would show Yourself one more time in Your miraculous way by
giving Creed total and complete healing. By Your mighty hand You
created this sweet little boy and though satan has attacked him
through illness, I call on the strength of Job and in all that is
holy, I ask Your healing touch to fall on Creed. I pray that my
loving daughter be filled with Your strength as she continues to
keep her eyes focused on You as she cares for her son and leads
others to Your saving grace by her thoughts, prayers, actions and
deeds. I am reminded of the multitude of angels that You sent to
proclaim the birth of Your Son. The magnitude of the event had to
be magnificent. In that thought I ask You to once again show Your
magnitude in healing Creed and using him as a testimony to what
prayer can do. I stand on the road with Jesus just as the centurion
did and in the same faith he had, I ask You to heal Creed
completely. Then use me to minister to others through this
experience. I praise You Almighty God, I thank You and adore You. I
worship You with my whole being. I accepted Your Son as my Savior
years ago and in His holy and matchless name, Jesus the Christ, I
lift this my prayer to You. Amen and Amen Mama/Gigi
Wonderful news this week before Christmas! We are spreading
the word to our friends on FB to pray for Creed and send him some
mail!!!!( I am friends with Dwight.)
That is wonderful! He is a strong little boy!glad to hear
He is doing better! God is so great!I have been praying and I have
him on the prayer list at my church! I check the updates
everyday!ppl always think they got it bad and its situations like
these that really make ppl come together! No child should have to
go through what he has and is going through but I look at it like
this!it is making him so stronger! I am truely amazed by how well
you are able to hold yourself together and how much strength yall
both have! Well I hope the improvements continue! God bless you and
your family!With much love and prayers , Kristen
Congratulations on Creed’s update!God is truely merciful
and His words ring true! He won’t put anymore on you than you can
stand! My family and I will continue our prayers for Creed and your
family! You are truely a mother sent from heaven and I admire your
strength and courage. Merry Christmas! God bless you family and
Creed!, Daphne
Awesome news! Made my day! We are praying constantly for
you and Creed. Much love, hugs and prayers!
Each new day provides a new opportunity for sharing love and praise. You all remain in our paryers.
Steph, it was nice to see you earlier this week. Am
absolutely thrilled that Creed is improving. You guy’s are very,
very strong and an inspiration to many. My thoughts and prayers are
with each of you. Your little Creed as a tough cookie. You should
be proud of the spirit and strength that pumps through that little
heart. Hope the weekend shows continued improvement!! AT
Stephanie and Jon, I do not personally know you all, but
have been praying for Creed after getting emails from a lifelong
friend of Courtney Dixon and Sheli Upchurch’s, Kristen Bagwell, who
is a dear friend of mine from college. Our God is an awesome God
and will continue to hear all of our prayers to completely heal
little Creeder. Blessings to you all, Heather Hargis