12/23/10 Update

Posted: December 23, 2010 by Kat in Uncategorized

Lots to share, so I’ll get started. After being extabated on Monday afternoon, the excitement in the room has been so much that there hasn’t been much time to type. He’s doing really well breathing on his own. He is still requiring help with his oxygen, and has began physical therapy. His muscle tone is pretty much gone with him being on the ventilator for 10 days. I had no idea that would happen so fast. He has continued to dodge the dialysis machine (cvvh) and his kidney levels continue to decrease. The doctors are talking about maybe taking the cath out of his leg tomorrow. They removed his arterial line from his wrist today. He was allowed to have something to drink yesterday, he had not had anything to drink since the Sunday we were admitted. By yesterday, he was beginning to get very irritated and just wanted some water. The docs were ok with starting him on fluids and today he was allowed to eat. This morning he started off with a bowl of cereal. The biggest news of all is that we are headed back to BMT either tomorrow or Saturday. It’s been a long 3 weeks in the PICU and we’ve added more people to our family, but we definitely are ready to be settled back where we belong.

I will say that our room definitely looks like Christmas. He has received lots of gifts and has a cute little christmas tree that remains lit at all times. I can’t even begin to tell you how many cards he’s gotten. If I had to guess right now, I’d say somewhere around 300. It’s so much fun to see the mail come in every day and go through the cards. Creed loves when he get’s creative artwork. Thanks so much for taking the time to send him a card. The hospital staff is floored at the amount of mail one child can get. It’s incredible to see the amount of love and prayers that are being sent to us. I love visuals, it blows my mind at the number of cards that he’s gotten from people we don’t even know.

Creed had a visit today from someone very special, he came a few days early just to see him. Any guesses who it was???? Santa!!!! He dropped off a few gifts a little early. Afterwards, his special friend Brett Younker came and sang a few of his fav’s. He and Jon snuggled up in the bed and watched a movie after all that. It was a big day for him. There’s not much more planned for the day other than maybe a ride in the wheelchair…hope it goes better than it did earlier this morning. He gets dizzy and doesn’t love that.

Overall, he’s progressing in the right direction, slowly, very slowly. We’ll get there, he’s a fighter and will not let this get him down. Just in 2 days we’ve seen a lot of progress. Please continue to pray for his complete healing and for him to regain his strength. Thanks for loving on us the way you have.

Much love,
Creed’s mom

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Comments
  1. Ma and Aunt Sarah says:

    We are so thankful for the progress Creed is making. WOW,
    what a super man he is! We continue to pray for his complete
    healing and a great future. God Bless.

  2. Debra Knight says:

    Creed,
    I am so excited that you are doing so good! We sent our Christmas cards out today. You probably won’t get it until Monday. We had to wait until Wesley got home from college to take the picture then it took 10 days for the cards to come back.

    I know you were glad to see Santa and I know Santa was glad to see you! You are a special little boy and I know Santa has been praying for you too. I know Santa is a Christian……I have a book and a statue of Santa kneeing by Jesus in the manger.

    I hope you have a VERY MERRY CHRISTMAS!!! Give your Mom, GiGi and Pop Pop a hug for me!

    Love,

    MS. Debra Knight

  3. Mary & Al Holcomb says:

    Our thoughts and prayers are with Creed each day (also his
    family) We are so happy that he is improving and we will keep you
    all in our prayers. Please have a Merry Christmas and Happy Healthy
    2011 May God Bless you ALL, TOP OF GA. Friends Al and Mary
    Holcom

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